Chronic Illness Can Require Careful Energy Budgeting
Chronic illness may require you to budget your energy carefully—go over your limit, and your body sends the bill in the form of exhaustion, pain, or flare-ups.
What You Do Today to Manage POTS—or Don’t Do—Can Impact You Tomorrow or Even Days Later
POTS (postural orthostatic tachycardia syndrome) doesn’t always give instant feedback—sometimes the effects show up a day or two later.
Mast Cell Activation Syndrome (MCAS) and Difficulty Sleeping at Night
Mast cell activation syndrome (MCAS) can make it difficult to sleep at night for many different reasons. Histamine levels in the body follow a natural daily rhythm, often peaking in the early morning (overnight) and decreasing throughout the day. For those with MCAS, a rise in histamine overnight can trigger symptoms and significantly disrupt sleep.
Joint Subluxations in hEDS and HSD
People with hEDS (hypermobile Ehlers-Danlos syndrome) or HSD (hypermobility spectrum disorder) often experience joint subluxations, which are partial dislocations that can occur suddenly, painfully, and often with little to no warning.
“Just Drink More Water?” It’s Actually Not That Simple With POTS
For people with POTS (postural orthostatic tachycardia syndrome), staying hydrated isn’t just a daily checklist…it’s a whole strategy. Hydration for POTS takes planning, timing, a lot of trial & error, and more than just a water bottle. Let’s take a closer look at why hydrating with POTS is not as easy as it sounds.
Identifying MCAS Symptom Triggers
With MCAS (mast cell activation syndrome), recognizing symptom triggers is essential for symptom management, and can be tricky since they are not always obvious and are different for everyone. Symptom triggers I often see in MCAS:
Grief in Chronic Illness
Grief in chronic illness doesn’t just happen once—it recycles. People with chronic conditions often grieve the same losses over and over. How to offer support to someone experiencing grief from chronic illness:
What’s Behind Fatigue in EDS/HSD
Fatigue in EDS (Ehlers-Danlos syndrome)/HSD (hypermobility spectrum disorder) isn't just feeling tired. It's exhaustion that wraps around your body like dense fog. It can be there when you wake up, and even when you're doing nothing. Here’s what can be behind it:
What You’ve Heard About POTS Might Be Wrong
POTS (postural orthostatic tachycardia syndrome) is often misunderstood—even by healthcare providers. Misinformation about the condition delays diagnosis and care. Here’s what research actually reveals.
If This Pattern Sounds Familiar, It Might be Time to Learn About MCAS
MCAS symptoms are frequently misinterpreted as unrelated issues, when in reality, those issues can actually be overactive mast cells (type of immune cells) releasing chemicals like histamine that affect multiple organ systems throughout the body.
'Why Bother Getting Diagnosed With hEDS if There’s No Cure?'
Here’s the thing—people can’t manage illnesses that they don’t understand. Without a diagnosis, people often push through pain or dislocations, thinking it’s all in their head, just bad luck, or that their constant fatigue is just laziness.
Pelvic Venous Insufficiency (PVI) Seen in Some Individuals with POTS
Pelvic venous insufficiency (PVI), which is a condition where the veins in the pelvis are unable to properly move blood back up to the heart, leading to blood pooling in the pelvis, can sneak under the radar in some people with POTS.
Is There a Link Between ADHD & Mast Cell Activation Syndrome (MCAS)?
11% of children and 6% of adults have been diagnosed with ADHD. MCAS has an estimated prevalence of 17%, although it is rarely recognized. It’s not uncommon for MCAS and ADHD to appear together. Let’s take a closer look at what recent research can tell us about this.
Tachycardia is Often Not the Most Bothersome POTS Symptom
For many with POTS, tachycardia (fast heartbeat) is not the most bothersome symptom. In fact, some don’t even notice it.
Pain in Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder: What’s going on beneath the surface?
With Ehlers-Danlos Syndrome (EDS)/Hypermobility Spectrum Disorder (HSD), it’s not just about being “flexible.” Pain with EDS/HSD can be complex and relentless. From abnormal collagen and joint instability to soft tissue damage, muscle overcompensation, and nerve issues, these conditions can impact your entire body. Let’s break down why pain happens with EDS/HSD—and what makes it so unique.