Joint Subluxations in hEDS and HSD

People with hEDS (hypermobile Ehlers-Danlos syndrome) or HSD (hypermobility spectrum disorder) often experience joint subluxations, which are partial dislocations that can occur suddenly, painfully, and often with little to no warning.

This is what they can look like:

  • Sharp or sudden pain

  • Hearing a pop or click, like something moved out of place

  • Joint feels stuck, stiff, or unstable

  • Sudden weakness of a joint 

  • A grinding or catching sensation

  • Dull ache or throbbing pain

  • Irritability or emotional fatigue due to pain and discomfort

  • Trouble sleeping due to pain

  • Swelling or inflammation

  • Muscle spasms or cramping

  • Numbness, tingling, or “pins and needles” if nerves are compressed

  • Referred or compensatory pain (hurting in a different place) 

  • Feeling faint, shaky, or lightheaded because of a vasovagal or autonomic response

Joint subluxations occur when a joint slips out of place but doesn’t fully dislocate—and this doesn’t necessarily make them any less painful than a full dislocation. 

They are often managed through strategies such as:

  • Gentle massage

  • Physical therapy for strengthening exercises, proprioception training, and joint protection

  • Heat or cold therapy

  • Joint supports (like braces or slings)

  • Relaxation or soothing strategies

  • Magnesium salt baths or pools

  • Active distraction

  • Pain relieving medication

Joint subluxations can cause damage to the surrounding tissues, and can affect everything from mobility and muscle function to the nervous system and daily routines. They’re often invisible to others, but their impact is very real. 

Reference: The Ehlers-Danlos Society, Dislocation/Subluxation Management or “I’m just popping out for a while!”, Jason Parry, 2017

Disclaimer: This blog post is for informational purposes only and shall not be construed as behavioral health or medical advice. It is not intended or implied to supplement or replace treatment, advice, and/or diagnosis from your own qualified healthcare provider. 

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