Why Hot Weather Can Trigger Flares & Simple Strategies to Stay Cool
For those with mast cell activation syndrome (MCAS), dysautonomia (including postural orthostatic tachycardia syndrome/POTS), or Ehlers-Danlos syndrome (EDS)/hypermobility spectrum disorder (HSD), heat isn't just uncomfortable—it can be a powerful trigger. This blog post unpacks how hot weather impacts the immune system, autonomic nervous system, and connective tissue, often leading to delayed flares that are easy to miss. Learn how heat affects each condition, why symptoms might not appear until hours later, and which proactive cooling strategies can help protect your body. Staying cool isn’t just a comfort measure—it’s critical symptom management.
How Chronic Illness Can Change Your Relationships
Chronic illness doesn’t just affect the body—it changes relationships, often in invisible and painful ways. In this blog post, we explore how long-term illness can shift friendships, family dynamics, and emotional connection. Learn why people with chronic conditions may feel misunderstood or isolated, and how fatigue, grief, and changing capacity affect communication. We also offer insight into coping with relational changes and finding support that truly sees the whole you.
Coat Hanger Pain: Causes, Symptoms, and Effective Relief Strategies
Neck, shoulder, and upper back pain may seem like simple muscle tension—but in some cases, it’s something far more complex. Coat hanger pain is a distinctive pain pattern often linked to conditions like postural orthostatic tachycardia syndrome (POTS), other forms of dysautonomia, Ehlers-Danlos syndrome (EDS), hypermobility spectrum disorder (HSD), and mast cell activation syndrome (MCAS), yet it is frequently overlooked or misdiagnosed. In this blog post, we explain what coat hanger pain really is, why it happens, and how it connects to broader circulatory and autonomic issues. You’ll also learn about practical strategies for relieving discomfort and improving daily function. If your pain worsens when upright and eases when lying down, this may be the clue you’ve been missing.
The Pressure Trap of Chronic Illness: Why It Happens and How to Break Free
Living with a chronic illness often comes with an invisible weight—the pressure to recover faster, appear “normal,” or meet others’ expectations. This constant pressure can come from yourself, loved ones, or even healthcare providers, and it doesn’t just affect your emotions—it can worsen symptoms and slow healing. In this blog post, we explore where that pressure comes from, how it impacts your body, and why it’s especially impactful for certain medical conditions. You’ll learn practical ways to set boundaries, pace recovery, and protect your health from the cycle of overdoing it and crashing. If you’ve ever felt like you’re falling behind in your healing, this is the permission you need to slow down.
Chronic Illness and the Grief of a Life Rewritten
Chronic illness doesn’t just affect the body—it can change your identity, alter your future, and bring a quiet grief few recognize. In this blog post, we explore the emotional toll of chronic illness. You’ll learn how to name and process the grief of lost abilities and dreams, while finding purpose and joy in a life rewritten. If you’ve ever felt unseen in your struggle, this is the validation and encouragement you’ve been searching for.
When It’s Not “Just Stress”
Not every racing heartbeat, dizzy spell, or shaky moment is “just stress.” Conditions like postural orthostatic tachycardia syndrome (POTS) or other forms of dysautonomia, Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD), and mast cell activation syndrome (MCAS) can produce anxiety-like symptoms—but with very different underlying causes. In this blog post, we unpack why these medical conditions are so often mistaken for stress, the red flags that it’s something more, and how misdiagnosis can delay effective treatment. You’ll also learn when to push for deeper evaluation, especially if anxiety treatment hasn’t worked. If your symptoms are persistent, unexplained, or resistant to treatment, this could be the missing piece.
When Diagnosis Takes Time: Supporting Those Living in Medical Limbo
Living with unexplained symptoms can be just as exhausting as living with a diagnosed chronic illness. In this blog post, we explore the emotional and physical toll of “medical limbo,” when conditions go undiagnosed for months or years. You’ll learn why test results don’t tell the whole story, how to support someone still searching for answers, and the dangers of dismissing symptoms too soon. If you or someone you love is waiting for a diagnosis, this may be the understanding and validation you need.
Medical Trauma Doesn’t Always Make Noise: How Dismissal Shapes Patient Experiences
Medical trauma isn’t always caused by a dramatic event—it can stem from being dismissed, doubted, or ignored while seeking care. In this blog post, we explore how disbelief and minimization affect people with chronic illnesses, and the lasting emotional toll it leaves. You’ll learn the subtle signs of medical trauma, why it’s so common in complex conditions, and how healthcare providers and loved ones can break the cycle. If you’ve ever left an appointment feeling unseen or unheard, this might validate your experience.
Chronic Illness and the Art of Energy Budgeting
For people with chronic illness, energy is a limited resource that must be carefully budgeted. In this blog post, we explain the concept of energy budgeting—also known as spoon theory—and how it helps prevent crashes, manage symptoms, and maintain quality of life. You’ll also learn practical ways to support someone pacing their activity, from respecting rest to honoring boundaries on “good days.” If you’ve ever wondered why a loved one cancels plans or needs more downtime, this will give you the insight to truly understand.
Grief in Chronic Illness: Why It Returns and How to Offer Support
Grief in chronic illness isn’t a one-time event—it can return again and again as symptoms change, abilities shift, and new losses appear. In this blog post, we explore why this recurring grief happens, how it impacts people with chronic conditions, and practical ways to offer meaningful support. You’ll learn how to validate repeated losses, avoid toxic positivity, and be present without rushing someone’s healing. If someone you love is grieving the life they once had, this might help you understand and support them better.